Co-Founder, President, Treasurer and Survivor
Jenee was only 32 and her little girl had just turned 2 when IBC struck without warning. But this former teacher has become a valiant spokesperson for this disease and as she says, "It's my passion to educate people about IBC because it is a little known disease which requires early detection. Our foundation was born out of a large number of forces coming from all different directions. All for the same reason.
Co-Founder & Former President
Medical reasons have brought Patti's involvement with the Foundation to an end. This was a hard but proper decision, and she knows that the current board and volunteers will move the Foundation forward.
Patti's only daughter Tina was diagnosed with Inflammatory Breast Cancer in 2003, which had already metastasized to her liver. Tina pleaded with her mother to write about this under reported and overly misdiagnosed type of breast cancer. Not finding anyone who was willing to take her writings, (for fear of scaring the public), she turned to television. When she met the staff KOMO TV in Seattle Washington, she found a physical voice and a way to get the message to the masses.
On August 29, 2007 Patti lost her beloved daughter, Kristine "Tina" Turck.
"Knowledge is Power" says Patti, is the only way we can win this war" The battle of education in the public arena as well as the medical community is not over, and will not be until not one more woman is 'surprised' by a diagnosis of Inflammatory Breast Cancer.
Massimo Cristofanilli, MD
Co-Founder & Medical Advisor
Director of the OncoSET Precision Medicine Program
Department of Medicine-Hematology and Oncology
Robert H Lurie Comprehensive Cancer Center at Northwestern University
Secretary & Survivor
Peggy was diagnosed with IBC in April 2007, after being misdiagnosed for 6 weeks. She is a wife (married to Alan), mother (of 2 wonderful children Samantha & Jack), step-mother (of Jessica), friend, sister, colleague and more. She started the first “IBC Get Together” in Michigan, was instrumental in getting the Michigan IBC Proclamation passed for October, and has been a continual advocate for IBC.
Alan is a Real Estate broker and builder, and a Michigan State delegate from his district.
Alan is also the husband of Peggy Stephens, IBC survivor and has become a staunch advocate and public speaker on behalf of IBC and the IBC Foundation. Alan stays politically active in his home state of Michigan.
Director & Survivor
Edie was diagnosed on April 20, 2001, Stage 3B, 9 nodes involved, HER 2+ ER/PR -.
Edie is in charge of our phone lines and always educates especially in the state of Michigan. Thank you Edie for all your help!
Jeannine Donahue, CN-BA
Director & Survivor
Lurie Cancer Center OncoSET Program Coordinator
Jeannine was diagnosed with Stage IIIB Inflammatory Breast Cancer in April 2007 at the age of 26, she was ER/PR/HER2 +, BRCA 1 and 2 with no family history. She was misdiagnosed twice before receiving the diagnosis of IBC. She attributes her diagnosis to knowing her body and being her own advocate. She recently switched careers from Accounting to Patient Advocacy and Education, and moved from Philadelphia to Chicago to work with Dr. Cristofanilli at Robert H. Lurie Comprehensive Cancer Center.