Patti’s only daughter Tina was diagnosed with Inflammatory Breast Cancer in 2003, which had already metastasized to her liver. Tina pleaded with her mother to write about this under reported and overly misdiagnosed type of breast cancer. Not finding anyone who was willing to take her writings, (for fear of scaring the public), she turned to television. When she met the staff KOMO TV in Seattle Washington, she found a physical voice and a way to get the message to the masses.
On August 29, 2007 Patti lost her beloved daughter, Kristine “Tina” Turck.
“Knowledge is Power” says Patti, is the only way we can win this war” The battle of education in the public arena as well as the medical community is not over, and will not be until not one more woman is ‘surprised’ by a diagnosis of Inflammatory Breast Cancer.
DR. MASSIMO CRISTOFANILLI
Director of the OncoSET Precision Medicine Program
Department of Medicine-Hematology and Oncology
Robert H Lurie Comprehensive Cancer Center at Northwestern University
I am a physician-scientist known for contributions in several areas of clinical and translational research—one of which is the research and treatment of inflammatory breast cancer (IBC), the most aggressive and deadly form of breast cancer.
I have worked for many years in defining the unique biological and clinical aspects of IBC. I started in the Morgan Welch IBC Research Program and Clinic, the first of its kind solely dedicated to this disease. The International Collaboration in IBC research has creased with the creation of the IBC International Consortium (IBC-IC) with IBC International Conferences held every two years. These events contribute to increased awareness and understanding of the disease and the development of dedicated clinical trials to improve the outcome for these patients.
Jenee was only 32 and her little girl had just turned 2 when IBC struck without warning. But this former teacher has become a valiant spokesperson for this disease and as she says, "It's my passion to educate people about IBC because it is a little known disease which requires early detection." Our foundation was born out of a large number of forces coming from all different directions. All for the same reason.
PEGGY STEPHENS, PRESIDENT & SURVIVOR
Peggy was diagnosed with IBC in April 2007, after being misdiagnosed for 6 weeks. She is a wife (married to Alan), mother (of 2 wonderful children Samantha & Jack), step-mother (of Jessica), friend, sister, colleague and more. She started the first “IBC Get Together” in Michigan, was instrumental in getting the Michigan IBC Proclamation passed for October, and has been a continual advocate for IBC.
JEANNINE DONAHUE, CN-BA DIRECTOR & SURVIVOR
Lurie Cancer Center OncoSET Program Coordinator
Jeannine was diagnosed with Stage 3B Inflammatory Breast Cancer in April 2007 at the age of 26, she was ER/PR/HER2 +, BRCA 1 and 2 with no family history. She was misdiagnosed twice before receiving the diagnosis of IBC. She attributes her diagnosis to knowing her body and being her own advocate. She recently switched careers from Accounting to Patient Advocacy and Education, and moved from Philadelphia to Chicago to work with Dr. Cristofanilli at Robert H. Lurie Comprehensive Cancer Center.
EDIE MILLET, DIRECTOR
Edie was diagnosed on April 20, 2004, Stage 3B, 9 nodes involved, HER 2+ and ER/PR -
Edie works behind the scenes on Facebook, talking with those diagnosed, trying to get a diagnosis or those hoping they don't have IBC. Edie was instrumental in coordinating a fundraiser in Michigan, is always helping with activities and get togethers. Thank you Edie for all your help!
ALAN STEPHENS, DIRECTOR
Alan is a Real Estate broker and builder, and a Michigan State delegate from his district.
Alan is also the husband of Peggy Stephens, IBC survivor and has become a staunch advocate and public speaker on behalf of IBC and the IBC Foundation. Alan stays politically active in his home state of Michigan.