The Erase IBC Board would like to thank all the volunteers and donors who make our efforts possible.
Co-founder & Medical Advisor
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Co-Founder & Former President
Patti’s only daughter Tina was diagnosed with Inflammatory Breast Cancer in 2003, which had already metastasized to her liver. Tina pleaded with her mother to write about this under reported and overly misdiagnosed type of breast cancer. Not finding anyone who was willing to take her writings, (for fear of scaring the public), she turned to television. When she met the staff at KOMO TV in Seattle Washington, she found a physical voice and a way to get the message to the masses.
On August 29, 2007 Patti lost her beloved daughter, Kristine “Tina” Turck.
“Knowledge is Power” says Patti, is the only way we can win this war” The battle of education in the public arena as well as the medical community is not over, and will not be until not one more woman is ‘surprised’ by a diagnosis of Inflammatory Breast Cancer.
Jenee was only 32 and her little girl had just turned 2 when IBC struck without warning. But this former teacher has become a valiant spokesperson for this disease and as she says, "It's my passion to educate people about IBC because it is a little known disease which requires early detection." Our foundation was born out of a large number of forces coming from all different directions. All for the same reason.
President and Survivor
Peggy was diagnosed with IBC in April 2007, after being misdiagnosed for 6 weeks. She is a wife (married to Alan), mother (of 2 wonderful children Samantha & Jack), step-mother (of Jessica), friend, sister, colleague and more. She started the first “IBC Get Together” in Michigan, was instrumental in getting the Michigan IBC Proclamation passed for October, and has been a continual advocate for IBC.
Director and Survivor
Lurie Cancer Center OncoSET Program Coordinator
Jeannine was diagnosed with Stage 3B Inflammatory Breast Cancer in April 2007 at the age of 26, she was ER/PR/HER2 +, BRCA 1 and 2 with no family history. She was misdiagnosed twice before receiving the diagnosis of IBC. She attributes her diagnosis to knowing her body and being her own advocate. She recently switched careers from Accounting to Patient Advocacy and Education, and moved from Philadelphia to Chicago to work with Dr. Cristofanilli at Robert H. Lurie Comprehensive Cancer Center.
Director and Survivor
Edie works behind the scenes on Facebook, talking with those diagnosed, trying to get a diagnosis or those hoping they don't have IBC. Edie was instrumental in coordinating a fundraiser in Michigan, is always helping with activities and get togethers. Thank you Edie for all your help!
Alan is also the husband of Peggy Stephens, IBC survivor and has become a staunch advocate and public speaker on behalf of IBC and the IBC Foundation. Alan stays politically active in his home state of Michigan.