P.O. Box 16
Milford, Michigan 48381
1-866-944-4223
Milford, Michigan 48381
1-866-944-4223
Education is the MOST powerful tool in the fight against misdiagnosis and improper treatment of Inflammatory Breast Cancer.
Our Foundation's mission is to educate the public and the medical community when needed, that this form of breast cancer is different and is rarely picked up by mammograms.
Towards this mission, the fourth
Wednesday of the month our
radio show, called
IBC FACT & FALLACIES,
will dispel the myths and help educate our listeners.
What...
Common IBC Symptoms:
Things You need to know:
Mammograms usually don't pick up IBC
because normally there is no lump that women are told to look for.
Why - Reason #1
Doctors misdiagnose Inflammatory Breast Cancer as mastitis.
Why - Reason #2
We need to push this message across the country.
Who..
Our group of dedicated advocates are, and a brief message about
each one of us.
Tips:
On the top of most of the included pages of this website, you will
find TIPS. These are TIPS that doctors and patients have given
to people dealing with first symptoms of Inflammatory Breast
Cancer, plus TIPS from patients who have gone through
chemotherapy.
The information contained on the 'eraseibc.com' web site is presented for the purpose of educating people on Inflammatory Breast Cancer. Nothing contained on this web site should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly.
Living in the Pacific Northwest has truly been a blessing through the first part of 2010. We have dodged all the storms that have befallen the rest of the United States and are reveling in what seems like a very (almost too early) Spring.
We, at the foundation are planning events across the country that will hopefully educate those that have been in the dark about Inflammatory Breast Cancer and bring more awareness to those that think they know everything about Breast Cancer.
Our radio show, IBC Fact & Fallacies has received many more listeners in past months, so the message is getting out there. Thank you to everyone who has donated to our educational mission which helps continue to bring you interesting topics and guest speakers the fourth Wednesday of every month. Just like some of the flowers that are opening a bit early, so are the minds of our audience. Once in the dark about IBC, many more are learning that with on going science this disease can be arrested in many cases or held in check, unlike in years gone by.
Our voices have become stronger as our numbers grow, and instead of feeling like the proverbial lone town 'cri de coeur', we are being heard above the din of so many in the medical community the words we all hate to hear, "IBC is so rare you don't have to worry about it". With six new cases in just this last month, (that I personally know about), rare doesn't apply to my vocabulary anymore. Four of those cases were misdiagnosed, so I know there is much more work to be done on a national stage.
For every person that peruses the pages of our website and learns about IBC, or learns something they didn't know before, we need you to join us and speak up at breast cancer rallies, races for the cure, pink ribbon events and any stage
or venue where you can say loud and clear "IBC is different and everyone needs to know the facts".
With new clinics and more doctors devoting their energies to help in the fight against misinformation, there will be less misdiagnosed cases and earlier identification when a woman, or a man, presents with flagrant symptoms of IBC. Our message to everyone is and should be, "Rule Out IBC first", not last.
There will come a brighter day when our message is redundant. When women don't feel like they are alone and isolated, hanging by a single rope of limited knowledge by the medical people who they trust.
I pray that day is close at hand.
