Education is the MOST powerful tool in the fight against misdiagnosis and improper treatment of Inflammatory Breast Cancer.

Our Foundation's mission is to educate the public and the medical community when needed, that this form of breast cancer is different and is rarely picked up by mammograms.

Towards this mission, the fourth
Wednesday of the month our
radio show, called
IBC FACT & FALLACIES,
will dispel the myths and help educate our listeners.

Information

What...
Common IBC Symptoms:

  • a swollen breast
  • a painful breast
  • incessant itchy breast
  • a rash on one breast
  • a bug bite that won't go away
These symptoms may appear overnight without warning. If they do not go away with creams, ointments or antibiotics, demand that your doctor rule out IBC.

Things You need to know:
Mammograms usually don't pick up IBC because normally there is no lump that women are told to look for.

Why - Reason #1
Doctors misdiagnose Inflammatory Breast Cancer as mastitis.

Why - Reason #2
We need to push this message across the country.

Who..
Our group of dedicated advocates are, and a brief message about each one of us.

Tips:
On the top of most of the included pages of this website, you will find TIPS. These are TIPS that doctors and patients have given to people dealing with first symptoms of Inflammatory Breast Cancer, plus TIPS from patients who have gone through chemotherapy.

Medical Disclaimer

The information contained on the 'eraseibc.com' web site is presented for the purpose of educating people on Inflammatory Breast Cancer. Nothing contained on this web site should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly.

Foundation People and Events

IBC EDUCATIONAL EVENTS

November 15, 2009

Nancy Key winning the Powerful Patient Award from Andrew Schorr Nancy Key explains Inflammatory Breast Cancer to attendees at Andrew Schorr's Patient Power event.

November 2009

University of Washington Tumor Vaccine Group Open House. The IBCF participated and hopefully educated that evening.

Back row, left to right:
Jennifer Childs, Josh Aaseng, Dr. Lupe Salazar, Emily Jackson, Molly Boettcher; Front row: Ekram Gad, PhD
Left to right:
Heidi Marble, Patti Bradfield, Nancy Key

October 2009 (and other months added)

Our Foundation is very proud of Jacqueline Miller from Houston Texas, who joined our group in 2009. Her accomplishments in education of IBC are vast, and below her picture are but a few.

  • 05/06/20009 AFSCME 1550 Union Meeting - IBC Presentation
  • 09/23/2009 Greater New Testament BC (Women Meeting)
  • 10/05/2009 Harris County Hospital Dist, supplied pamplets for Cancer Clinic
  • 10/04/2009 Agapa Community Church, Pearland TX
  • 10/11/2009 Christ Deliverance Church, Missouri City Texas
  • 10/17/2009 Christ Deliverance Church Health Fair, Missouri City, TX
  • 10/17/2009 True Holiness Penacoastal Church - Women Conference
  • 10/17/2009 9th Annual Ride For a Cure -Trail Ride
  • 10/18/2009 The Hand of God BC, Missouri City TX
  • 10/19/2009 Volunteer for Phone Bank, Channel 2 News ( IBC Awareness)
  • 10/24/2009 Pamela Thompson Breast Cancer Walk, supplied pamphlets and bookmakers
  • 10/23/2009 Memorial Hermann Breast Clinic (Spoke to Head Nurse re: bringing IBC brouchers)
  • 10/25/2009 The Hand of God BC, Missouri City TX

Jacqueline at one of her many advocacy meetings, explaining Inflammatory Breast Cancer to a group she was asked to speak.

You GO GIRL, Very proud of you.

October 9, 2009
Washington D.C. Pink Virus Summit

Click picture for slideshow of event.

April 2009

VP Mare Kirschenbaum was invited to present for our foundation at American Society of Breast Disease Conference April 2-4 2009

Mare with Brooke Breslow, Executive Director of the ASBD Below, Karen Kirschenbaum 10 year IBC survivor, and daughter of our VP, with Brooke Breslow, Executive Director of the ASBD

December, 2008 Houston Texas



First International Conference and CME on Inflammatory Breast Cancer Patient's and patient advocates met with doctors from around the globe. Pictured from Left to right:

    Dorothy Slator Paterson, Houston, Texas
    Heather Patrick, Houston, Texas
    Jacqueline Miller, Houston, Texas
    Jenee Bobbora, Houston, Texas
    Aimee Shaw, Bakerfield, CA
    Alan Shaw, Bakersfield, CA
    Mary Jennings-Smith, San Marcos, CA
    Mare Kirschenbaum, Des Plaines, Ill
    Maggie Kirk, The Woodlands, TX?
    David Baker, Houston, Texas
    Patti Bradfield, Redmond, Washington
    *Laney Cummings, Durham, United Kingdom
    Ileene Robinson, Houston, Texas
    Sunnie Jacobs, Boca Raton, FL
    Charles Manning, Russellville, AR
    Kathleen Livingston, Waterford, MI
    Peggy Stephens, Michigan
    Alan Stephens, Michigan
    Tina Qualls, Austin, Texas
    Rose Batson, Austin, TX
    Phil Willingham, Woodinville, WA

photo by Ken Levy, Brooklyn, NY, also an advocate.

*Laney passed away unexpectedly December 23, 2008 at her home in Durham England. We are all deeply saddened by the loss of this amazing woman, and friend to all of us.

August 11, 2008



The largest peer reviewed funding ever awarded for IBC research, was announced as American Airlines unveiled two planes in Dallas, TX, featuring a pink ribbon running the length of the fuselage in honor of its partnership with Susan G. Komen for the Cure, which includes a $7.5 million pledge from the airline to research Inflammatory Breast Cancer at the IBC Clinic at M.D. Anderson.

The Komen Promise Grant was awarded to Dr. Fredika M. Robertson, Ph.D., Professor, Department of Experimental Therapeutics and Massimo Cristofanilli, M.D., Associate Professor of Medicine, Department of Breast Medical Oncology at the University of Texas M. D. Anderson Cancer Center. Dr. Cristofanilli is the Co-Director of the Morgan Welch Inflammatory Breast Cancer Research Program and Clinic. Dr. Robertson is the Director of Translational Research for the Morgan Welch Inflammatory Breast Cancer Research Program and Clinic.

Click here for Jenee Bobbora's speech at Dallas (This link will take you to YouTube, use your back button to return to this site.)

May 28, 2008


RADIO SHOW sponsored by "Through Our Eyes" and hosted by Steve Kovac's of the Steve Kovac's Prospective show. Steve invited Patti Bradfield, Mare Kirschenbaum and Dr. Paul Levine to talk for an hour about IBC, and we were honored to accept. You can click HERE to listen to the podcast.

February 14, 2008





A loss and a gain is bittersweet news: Jenee Bobbora our Secretary was interviewed on Channel 2 News in Houston. Congratulations Jenee on passing the 5 year mark with a great interview.Click picture for news.


2008 Awareness Actions


Barbara Hartraft, New Jersey, won a 2008 Yoplait Champion award for all her hard work through advocacy and education of Inflammatory Breast Cancer. Fighting her own battle with IBC, Barb continued on and made major inroads with both the public and the politicians on the East Coast. We will all be forever grateful for all Barbara did to bring education and awareness to Inflammatory Breast Cancer.
Click here to see Barb's video.

Barb also worked tirelessly with the State of New Jersey to advocate for better awareness in the medical community. Because of her efforts, THE NEW JERSEY COMMISSION ON CANCER RESEARCH issued the below: (click below to see a PDF copy of the report.

INFLAMMATORY BREAST CANCER: AN UPDATE FOR PRIMARY CARE PHYSICIANS

*ED Note: Barbara lost her 7 year battle with IBC on October 30, 2008. She was the ultimate fighter and strongest proponent for better education of IBC. She will be truly missed.

December 3, 2007
New Mexico State Capitol, Santa Fe, New Mexico


The University of New Mexico Cancer Center and the University of Texas - M.D. Anderson Cancer Center came together in a joint working relationship to research Inflammatory Breast Cancer.

Sen. Tim Jennings and Patty Jennings, spearheaded the effort which culminated in $3.2 million for IBC research, with New Mexico being the first state in the Union to fund this aggressive breast cancer.

Left to right: UNM President Dr. David Schmidly; Patty Jennings; M.D. Anderson Cancer Center Research Program Director Dr. Massimo Cristofanalli; UNM Cancer Center Director Dr. Cheryl Willman; UNM Executive Vice President for Health Sciences Dr. Paul Roth.

October 25,2007


The University of Texas M. D. Anderson Cancer Center announced it had received a $4 million appropriation from the Texas Legislature for research into IBC.